And now with Insurance

I had my first visit with my rheumatologist with insurance. My card came in the mail Saturday! I’m in such a good mood. I’m sure I looked like some sort of nut job. I was smiling the whole time. Everyone in the office was excited for me. My doctor had a list of things shes been waiting to do.

I finally had Xrays taken. Two of my neck. Two of my chest. ( I’m not sure what those were for) 3 for each hand. 2 more each knee. 2 for each hip. I couldn’t get into some of the positions though. My right hip wont bend outwards. And my knees wont straighten. The worst part was for the Xrays where I had to stand. The technician was so sweet though. She helped me stand. She held me up because I couldn’t stay balanced when they made me stand straight. I had to take a break after the second Xray. I was in an ungodly amount of pain from standing. But I got through it all. I wish I could have seen them though. I’m curious. The last Xrays I had were two and a half years ago. And the cartilage was almost gone then.

I also had tons of blood tests done. I don’t even know what all. There was something for thyroid. Something for vitamin b deficiency? Definitely something for calcium. And I had to pee in a cup for some odd reason. Ive never done that there. I should get the results soon. My doctor also wants me to see my endocrinologist about my thyroid. She said that may explain some of my fatigue.( Though she thinks it may be depression. Nope. Not it. ) I haven’t been to him in nearly three years. He found a goiter about 4 years ago. But the last time I saw him he said it had not changed sizes and that I should come back in a year or so. So I’ll call tomorrow about an appointment.

I have an order to start physical therapy too. She says its the most important. The order is for 3 times a week for six weeks. I have an appointment tomorrow for evaluation. Im kind of scared though. I mean, just standing makes me scream out in pain. How am I going to be able to handle therapy? I guess I’ll find out.

I also have an order for a bone Density screening. Because of my prolonged steroid use. The osteoporosis center is closed until after the 4th of August though.

 Oh, and I saw a dermatologist yesterday. He gave me a prescription and said it would go away completely. So that’s a relief. Just a rash that is in no way medication related. Woo!

Oh, and my rheummy said she was going to give Enbrelone more month and if it doesn’t do much better then we’re going to try Humira. If that dosn’t do much, then onto Orencia. Or some other medicine I’ve never even heard of. And now I’m going to taper off prednisone completely.

So I’ve had a very busy day. A fantastic day overall. But now I’m exhausted and sore and I’m going to try and go to sleep early. We’ll see if it works.  🙂


Rheumatoid Arthritis and Dieting V

I’ve lost another six and a half pounds. Yay for me. I started a juicing routine. My dad does it whenever he wants to loose weight. He lost eighty pounds a few years ago with it.

I can loose a pound a day when I stick to it regularly. It is a very good way to cleanse.

So here’s what I put in the juice. I have the perfect formula. I finally got it to where I don’t have to choke it down while trying not to vomit.

Here’s what I use. And some links to the health benefits.

I use 2 green apples. 2 red.

1 Large beet. Stems and all.

1and a 1/2 to 2 pounds of carrots

Half a bunch of fresh spinach

2 lemons

This makes about 32 ounces of juice. I really should do it at least twice a day. But I usually only manage once. Its good to have before a meal. It fills you up more. Celery and cucumbers are also really good to juice with. But they’re both too hard on my upchuck reflex. So I leave them out.

Total weight lost= 10.5 pounds

The waiting game

I am so good at the waiting game. I’ve been waiting for years….

Ok, I finally got my Medicaid card in the mail. Along with my Medicare prescription drug card. I have not however, received my Medicare card. Its all very confusing. I also cant seem to find any doctors offices that take Medicaid. Though some do take Medicare. But not without a card. Bleh.

My rheummy’s office doesn’t take either, but since I’m already a patient, they agreed to let me continue. I’m glad. I really like the one I’m seeing now. She replaced my beloved doctor a few months ago. I hated her at first. She nearly had me in tears the first meeting. Shes very up front and harsh sometimes. The more I’ve seen her, the more Ive realized that she doesn’t mean anything at all, and I’m probably just being too sensitive. She is obviously a very caring doctor. She goes above and beyond in my book.

Anyways, back to Medicare. Now I can call for a replacement card, but I can only get a recording. There is an option to have a replacement card sent to the address they have on file. But there’s no option to see what that address is. And that’s a huge problem for me in the first place. I’ve gotten dozens of letters lately. Some have made it to my address. Some they sent to a really old address. I still haven’t received those. Some they sent to my sisters address, and I don’t even know how they got that address. I’ve called the office, but cant seem to get anyone on the phone. I’ve left messages. They are never in a hurry to respond.

I talked to a physical therapist. She said Medicare is very picky about what they will and wont pay for. So they are going to evaluate me and see what they can do. But I still need a medicare card before they can see me. I have about five or six letters that mention my Medicare coverage. But none of them are the actual letter I need.

I called a dermatologist. They also need a card. At first they scheduled me for an appointment two months from now. Then I told them about the rash ( the drugs my rhemmy prescribed didn’t manage to do anything) and they rescheduled for first thing Monday. I need to get ahold of a card before then. Bleh.

But anyways, this is a temporary setback. I’m probably just rushing things. But my god, I’ve had health coverage for weeks! And I still havnt been to the doctor. Haha.

Also the girl that gives me my shots went on a vacation with no warning. So I’m really overdue on both my Enbrel and my methotrexate. So there are some tight tight tight knees right now.

Oh, but a change is gonna come 🙂

How rude!

I decided to go to the local health and human services office yesterday to see if they could give me a temporary insurance card while I wait for the one from social security to make its way through the mail. I hate going in there. The people obviously hate their job and don’t want to be there.

So I signed in and the lady in the front made a copy of my driver’s license( it was taken when I was 18 and tiny) and said it would take about an hour. So I sat down to wait. A few minutes later another woman came in and picked up the paper and looked around the waiting room and I was the only one in there. She sat down. About 40 minutes later she held the sheet up and said ” This isn’t you, is it?” I said yes it was and I was waiting for a temporary card.

She just looked back and forth between the paper and said “What happened to you?”

I just sort of stared at her in shocked. Muttered out something about weight gain and being sick and then went and sat back down. I was so embarrassed. I don’t know if she knew how f-ing rude that was.  She said it all sickly sweet and pityingly. Bitch.

And after all that, they couldn’t even find me in the system. So I called S.S. They said I’ve been covered since the beginning of June. But I’m not in the system yet. That doesn’t even make sense. Bleh. I’m supposed to try again Wednesday.

It was a really crappy day. But when I got home and weighed myself I saw I’ve lost 4 pounds! Ahh! I actually lost weight! I haven’t lost weight in like a year. I dropped my prednisone from 5mg to 2.5 several days ago. I haven’t told my doc yet. But I’m actually losing.

Rheumatoid Arthritis and Dieting IV

Ok, I’m aware that this is hardly worth posting. But I am excited.

I have been pretty much sticking to a diet. And while I have still not lost any weight, I finally stopped gaining!!!!!! Which is huge. I’m so glad to be almost rid of this evil foul horrible medicine. Damn it for being so effective though.

Total weight gain in 10 months= 84 pounds. I wonder if I can lose it all in the same amount of time. I feel like thats a reasonable goal. Wish me luck!

The storm is finally passing…..

I hardly have words for such wonderful news. I’ve never cried out of relief before. This big black cloud I’ve had over my head for the last few years is finally going to go away.

I officially have health care coverage.

Lets just let that sink in……

I have health care coverage. I now have medicare and medicaid.

Can anyone understand my relief? The weight being lifted from my shoulders?

I’m going to be able to get medicine whenever I need it. I can start physical therapy.

I’m going to be able to have Xrays. I’m going to be able to have my swollen neck looked at. I can have cortisone shots in me other knee.

I can go to the dermatologist! I can have my hypothyroidism treated. I can go to the dentist! The eye doctor! I can have real blood work done.

I don’t have to beg my family for money every month. I don’t have to be a burden on everyone I know.

I cant believe that after over three years with this disease I will finally be able to be treated like I need to!

Now I just have to wait on my card. The social security administration sent it along with my official acceptance letter to a very old address. For no apparent reason. Hopefully it will still be forwarded to my sisters address.

I’m so excited. I AM SO FRICKIN EXCITED!

Life is going to be so very different for me soon.